Advocacy – Autistic Nottingham

Coproduction – Is It Letting Us Down?

A blue background with some green in the corner. There is a desk with 5 people sat around it looking at laptops and paperwork, working as a team. The title reads "Coproduction - Is it letting us down?"

The term “Coproduction” has been around for well over fifty years. A term coined in the 1970s by Professor Elinor Ostrom (an American Economist). The idea came from Prof. Ostrom’s research into local crime rates. The local police force had changed tactics from walking “the beat” to using their patrol cars and, as a result, crimeContinue reading “Coproduction – Is It Letting Us Down?”

Creative Methodology & the Autistic Voice

Ridout, 20171/20 Full article: shorturl.at/bdrG5 AccessibleAcademia Nothing about us without usWho: RidoutWhere: Qualitative Research JournalPublished: 2017Title: The Autistic Voice and Creative Methodologies Becoming Vulnerable to New Ways of Knowing This paper wanted to recognise communication as a challenge between autistic and non-autistic people, and that the autistic voice is not silent, but lacks involvement atContinue reading “Creative Methodology & the Autistic Voice”

Spectrum 10K

Natri, 20211/20 Full paper: https://www.researchgate.net/profile/Heini-Natri/publication/356218196_Spectrum_10K_and_The_Questionable_Past_Present_and_Future_of_Genetic_Autism_Research/links/61928c213068c54fa5eae88e/Spectrum-10K-and-The-Questionable-Past-Present-and-Future-of-Genetic-Autism-Research.pdf AccessibleAcademia Nothing about us without usWho: NatriWhere: The Translational Genomics Research InstitutePublished: 2021Title: Spectrum 10K and The Questionable Past, Present, and Future of Genetic Autism Research Spectrum 10K:The matter is urgent.The time to act is now. Natri, 20212/20 In September 2021, the Spectrum 10K genomics project was paused in responseContinue reading “Spectrum 10K”

Barriers to Health Care

1/18 Full paper: https://www.liebertpub.com/doi/pdf/10.1089/aut.2020.0074 AccessibleAcademia Nothing about us without usWho: Strömberg and colleaguesJournal: Autism in AdulthoodPublished: 2021Title: Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings Barriers to Health Care Autistic adults have a high rate of mental health conditions & increased mortality from suicide compared to nonautistic adults, asContinue reading “Barriers to Health Care”

How should autism research change?

(Did you know that we are not-for-profit? So when you donate, all of your donation goes straight back into the work we do for the Nottinghamshire autistic community! You can donate here: https://cafdonate.cafonline.org/16400#!/DonationDetails) 1/4 Full paper: https://journals.sagepub.com/…/10.1177/1745691620958010 #AccessibleAcademianothing about us without us Who: Davies & CromptonJournal: Perspectives on Psychological SciencePublished: 2021Title: What do new findings aboutContinue reading “How should autism research change?”

We’ll be representing ourselves, thanks.

Introduction: I wanted to be able to write a longer piece about a topic which affects our community, and the planned topic for this piece came from LGBTQ+ Autistic community, specifically from the Nottinghamshire area. Nottingham is home to one of only six gender identity clinics (GIC) in England. The GICs are specialist gender services,Continue reading “We’ll be representing ourselves, thanks.”

The Importance of Advocacy Awareness Week – From the Trustee Board

As Chair of the Trustee board for Autistic Nottingham, I don’t get the confidential reports of individual clients, but what I do have is visibility over the impact of advocacy across the organization. Furthermore I see comments come in from other areas on our social media such as “we have nothing like this where weContinue reading “The Importance of Advocacy Awareness Week – From the Trustee Board”