Nothing about us without us
Who: Talcer, Duffy, & Pedlow
Journal: Journal of Autism & Developmental Disorders
Title: A Qualitative Exploration into the Sensory Experiences of Autistic Mothers
Sensory Experiences of Autistic Mothers
Part 2. Motherhood
This study wanted to explore the sensory experiences of autistic mothers, the impact on their role as mother, and the coping strategies they employ
This research had five themes:
antenatal, sensory experiences in motherhood, impact, strategies & needs, and diagnosis.
> Body awareness
Auditory stimuli was reported as one of the main sensory areas which cause stress.
Child learning to talk
Loud & bright children’s toys
“[The baby crying] was like ice down my back.”
Many felt overwhelmed by the sudden increase in tactile input which comes from having a baby.
“My body was constantly and still is invaded and I find that so difficult.”
“It’s difficult, isn’t it, because I love him dearly, and I know he’s showing me affection, but I cannot, it’s like I’m too full, it’s a painful fullness and my skin’s going to burst, it’s awful.”
Breastfeeding was highlighted as especially painful & overwhelming, and this impacted other relationships in the family
I got very touched out, to the point where I couldn’t stand my partner touching my arm
Some participants reported that their body awareness was different after birth
This impacted their recovery from birth & their transition into motherhood